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New Patient-Centric Perspectives in Medical Research: Ethical and Governance Challenges
International Conference
Hotel Meliá Roma Aurelia Antica
Rome
28-29 October 2011
Over the past few years, there has been considerable debate over the regulations and guidelines required for the governance of genomic projects and biobanks. Consent from research participants is mandatory and it is now widely accepted that there should be some form of public engagement to ensure public trust and to give the research endeavor legitimacy. Although involvement of participants has been regarded as important, the ways in which involvement has been implemented in the research process has varied enormously depending upon different factors. More recently, patient groups and direct-to-consumer testing companies have developed new forms of participant-centric approaches, by using information technology that places the individual in control and at the centre of activities.
This conference will show case some new initiatives advancing a participant-centric approach and provide a forum for critical discussion and appraisal.
Abstracts and bios
Final Program
Call For Papers
Register for the Conference
| Speaker |
200 € |
| Participant |
200 € |
| Student |
150 € |
The registration fee includes all coffee breaks and lunches, as well as conference material.
Participation to the conference dinner on Friday, October 28th amounts to 50€.
Hotel Accomodation
How to reach the venue
Abstract Submission
Please prepare your abstract according to the following format and send it to patientcentricity@eurac.edu no later than Wednesday, July 20th 2011.
Abstract Format
Scientific Committee
Deborah Mascalzoni
Claudio Corradetti
For further information please contact:
Francesca Corradi, CMP
Tel. +39 0471 055043
Fax. +39 0471 055049
e-mail: patientcentricity@eurac.edu
web: /patientcentricity
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